Born Missing Limbs, This is How Grace Lives Without Limits

Meet Grace, an 18-year-old girl with only one limb but with three important life lessons to share.

18 Jul, 2018


Born Missing Limbs, This is How Grace Lives Without Limits

Have you ever met someone who in just a few seconds put everything in your own life into perspective? I have. And I want you to meet her too.

This is Grace.

Perhaps her photo alone makes you look twice? And it should. See, Grace was born with one limb—her right arm, half a limb on her left arm and no legs. I’ll let her take it from here.

Born Missing Limbs, This is How Grace Lives Without Limits

When I was born, my family and relatives thought I was a curse. They tried to convince my mother to stop breastfeeding me so that I would die of hunger. They said that nothing like this had ever happened in their clan before and that as soon as I was born even the livestock started dying.”

Grace’s mother Birasasira her and father loved their daughter from the moment they held her in their arms. “I loved what came out of my womb, that God created within in. Her father loved me too,” says Birasasira. But to her dismay, some of her in-laws rejected Grace. They demanded the baby girl be killed, but Grace’s parents refused: they considered her a gift from God. The pressure mounted as family members threatened her father’s life if they refused, but her parents stood firm to protect their daughter.

But devastation came.

Grace’s father was attacked and murdered while working as a security guard. “My mum felt like she should move to Uganda to keep me safe,” says Grace.

Fleeing to Uganda, Birasasira, her four older children and baby Grace moved into a simple grass-thatched home. With no land and nothing to her name, Birasasira struggled to provide for her children. She earned income by working in her neighbour’s gardens.

When we arrived in Uganda my relatives here also believed I was a curse and so my mum made arrangements for me to stay with a lady called Betty [to keep me safe]. I lived with her for seven years,” says Grace.

“As I grew up, I began to discern that I was different from other children. In fact one time I asked my mum, ‘Did you chop off my legs? Why am I different from other children?’ Growing up those kids would ridicule me and make fun of me because I couldn’t play like they played or be involved in the games they were. I was a bitter person back then. I’d even throw stones at people.”

Born Missing Limbs, This is How Grace Lives Without Limits

Despite already having a large family herself, Betty was moved with compassion towards Grace’s situation.

“I knew that her mother and she were refugees from Rwanda and that they were having family disputes over Grace’s disability,” she says. “I had a big family myself with nine children but we bonded so strongly when she joined us at four years of age that she became family. It’s as if she is my own biological child—we connected that divinely.

At that time Compassion was in our community and instead of registering my own children, I decided to enrol Grace to give her a better opportunity. Grace is a very visionary person. She’s a very forward looking person, regardless of her physical disability.”

The encouragement Grace received from the Compassion staff will always stay with her.

“I remember feeling so good when they would tell us that we are all made in the image of God. They used to tell me ‘ God has a good plan for you’.” Project director Michael Masba was the person responsible for registering Grace into the Child Sponsorship Program. “Compassion is here for children like Grace,” he says.

“Children with disabilities face so many challenges here in Uganda. They are isolated and looked on by society as useless. They don’t have access to schooling and they suffer a lot. We used to tell her, ‘Being disabled doesn’t mean you can’t make it. You can become a great woman. You can be a testimony.’ In Africa we learn by seeing. So if such a person can make it, then other people with disabilities will see that and be catered for.”

At the time, Grace believed she was the only child in the world with special needs. She was astonished when the project director introduced her to children with disabilities at the Katalemwe Cheshire Home for Rehabilitation. “When I saw people like me at Katalemwe, I said, ‘God has plans for me and the reason God created me like this is to make a beautiful story’.”

Born Missing Limbs, This is How Grace Lives Without Limits

For Grace, the most impacting part of the Child Sponsorship Program was learning about Jesus’ love for her.

“I used to be full of bitterness and through the program I was able to be liberated from that wrath and anger and given a heart full of love. The program also gave me school books, hygiene items, blankets, a mattress and school tuition. It was also Compassion that secured for me a wheelchair as I did not have a way to move around. I came to realise that it was God who had kept me alive and he must have a purpose for me. Compassion encouraged me to build my self-esteem, not live in self-pity. My motto is that disability is not inability. With God, all things are possible.

I have three things I want to tell people.

1) You are not a mistake. You were created by God and you have a purpose.

2) That purpose has a significant place on this earth. You have a contribution to make.

3) Regardless of how others sees you, your worth and value comes from God.

I think people believe that those of us with disabilities are useless and can’t do much in the earth. To them we’re not useful or productive. But I’ve never thought like that. Whatever normal people do with limbs, I can do them too. For instance, I cook, I am able to mop our house, I’m able to wash and so I’m not limited. I have a goal of being a journalist one day and doing radio presentation. I believe I can do anything!”

In the Bible there’s a verse that talks about how the last will be first and the first shall be last. Grace personifies that. In her culture she is amongst what the world would term, “the least of these”. But her resilience, positivity, deep relationship with God and bone deep belief that she will fulfil her purpose in her generation humbles you to your core.

The smiles in her photos are not fake, they are what true joy looks like. Joy that surpasses circumstances and comes from the throne room of heaven. And that joy is new every morning and served with a heaping of grace upon grace upon grace.

Words and photos by Helen Manson; additional reporting by Caroline Mwinemwesigwa.


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